The Fragile X Syndrome Association was founded in 1995 to cater for the needs of those families with children affected by Fragile X Syndrome. After receiving the diagnosis, these families live through very difficult times, charged with uncertainty. The association has become a meeting point and a source of support for families to exchange experiences and feelings.
That is why one of our main objectives is to welcome and help recently diagnosed families.
In addition, fragile X syndrome is still poorly known and understood by our society so one of our most important objectives is to spread informations and make society at large be aware of what Fragile X Syndrome is.
The association is registered in the Official Register of Associations under the number 16.155 and has been classified as a charitable institution.