: News
Primera xarxa d'experts en malalties minoritàries a CatalunyaPrimera red de expertos en enfermedades minoritarias de CatalunyaFirst minority diseases' experts network in Catalonia

The Catalan Service of the Health (CatSalut) has designated the first network of clinical expert units (XUEC) of attention to the minoritary illnesses in Catalonia, devoted to the attention to the behaviourcognitive illnesses of genetic base in early stages. The creation of this medical resource supposes a step forward for the research, the diagnostic

Col·laboració amb el Projecte Pa Pé amb GràciaColaboración con el Proyecto Pa Pé amb GràciaCooperation with 'Pa Pé amb Gràcia' project

We are proud to announce that we have started to collaborate with the Catalan Association of Integration and Human Development, that drives the project ‘Pa Pé amb Gràcia’. This consists in recycling and collecting paper all around the neighbourhood of Gràcia. The initiative is born from the will of learning: acidH promotes a Occupational

Jornades de sensibilització a La Salle GràciaJornadas de sensibilización en La Salle Gràcia

The managers of the Program of Self-determination of the Association, the social educator Anna Minguella and the social integrator Rafa Morillo, together with the educator Marta Bou, have carried out two days of sensitisation in the School La Salle Gràcia. On Monday 16th and Tuesday 17th, the three members of the technical team have organised explanatory

Segona part del Taller de Logopedia per a famíliesSegunda parte del Taller de Logopedia para familiasSecond speech therapy meeting for associated families

OnSaturday 14th of January, the Association counted with the help of the logopedist Sara Álvarez to do the second part of the Speech Therapy meeting also realised during the first part of November. The families of the Association completed the therapy of the logopedist Álavarez and, at the end of the session, the feedback receipt from the assistants

Portes obertes a l'entrenament del Barça Día de puertas abiertas del FC Barcelona FC Barcelona's open house

On January 3rd, more than 30 members of the Association attended to FC Barcelona’s open day, when the first team had its training session in Mini Estadi in a very special day for the youngest fans.  Several families of the ACSXF enjoyed the best football in the world thanks to Barcelona’s traditional act. As the club does every year, every

L'Associació al partit de la Marató i a la Copa del ReyLa Associació en el partido de la Marató y en La Copa del ReyThe Association in La Copa del Rey and La Marató Charity Game

Some members of the Associació Catalana Síndrome X Fràgil could enjoy of the best football in December. Thanks to the charity acts of La Marató and FC Barcelona, our boys and girls went to first level matches.  On December 18th, many families attended to the Mini Estadi in order to watch the famous vs famous game powered by La Marató. Famous

Berenar de Nadal 2016Merienda de Navidad 20162016 Christmas Afternoon Snack

On Saturday 17th of December, we met once again to celebrate a Christmas Party in the Association. As usual, the families came to La Salle Gràcia school to take part in a Christmas special craft workshop, have hot chocolate and a spend a really nice afternoon al together. Over 30 families attended the Association’s Christmas afternoon snack.

Paradeta al Col·legi Jesús-Maria Sant GervasiParada en el Colegio Jesús-María de Sant GervasiStand at Jesús-María school in Sant Gervasi

The Associació Catalana Síndrome X Fràgil could be at Col·legi Jesús-Maria in Sant Gervasi. Thanks to the parents’ association, one of our board members, María Elena, could set a little stand to raise funds.  We want to thank the AMPA and the School for their interest and gentlehood. These little actions help us to go on with our duties

Vine a la Passejada en Roda Petita el proper 19 de febrerVen a la Passejada en Roda de Petita el próximo 19 de FebreroCome and join to "La Passejada en Roda Petita" on Sunday 19th of February"

We are happy to announce the typical “Passejada en Roda Petita” has been set. The act will take place at Gràcia on 19th of February. Everyone can come and join us with just one condition: you must bring your bike or skate in. Nevertheless, the most important thing is to enjoy of a nice day with your friends and relatives. Follow us on

Últimes novetats sobre la X Fràgil a la jornada del Parc Taulíültimas novedades sobre el X Frágil en la jornada del Parc TaulíLatest news about the X Fragil in the Parc Taulí meeting

La Jornada d’actualització de la Síndrome X Fràgil celebrada al Parc Taulí de Sabadell el passat 19 de novembre va presentar les últimes novetats relacionades amb el camp de la investigació. Des d’un punt de vist científic, els ponents van exposar les propostes clíniques més avançades dins l’àmbit de la X Fràgil. La trobada