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Assistim a la jornada sobre el repte de l'assistència sexualAsistimos a la charla sobre el debate de la asistencia sexualSexual assistance and disability: a large debate

On Friday 10th of November, the Coordinator of the Program of Self-determination of the ACSXF, Anna Minguella, attended the day “sexual Assistance: a challenge in front of the people with functional diversity” at the Auditorium of the Maritime Museum of Barcelona. The meeting, organised by the Group of Work of Psychology and Disability

Assistim al taller sobre la sexoafectivitat per a persones amb discapacitatAsistimos al taller sobre sexoafectividad para personas con discapacidadSex and disability: we take part of a special workshop in Girona

El passat 7 d’octubre, vam tenir el plaer d’assistir a un interessantíssim taller sobre els drets de les persones amb diversitat funcional respecta aun tema tan tabú com el sexe.  A través de ponents com l’alcaldesa de Girona, Marta Madrenas, la Dra. Montserrat Castellana, la psicòloga clínica Maite Villalón, l’especialista

Èxit del III Taller per a professionals relacionats amb la Síndrome X FràgilÉxito en el III Taller para profesionales relacionados con el Síndrome X FrágilThe III Workshop for professionals related with the Fragile X Syndrome was a huge success

The III Workshop for professionals related with the Fragile X Syndrome was a success thanks to the almost 100 assistants. All the presents highlighted the quality of the interventions of the neuropsychologists, to which we thank once again their kind participation. Katy Garcia and Eugènia Rigau contributed with a lot specific knowledge on the Syndrome.

La Generalitat tira endavant el nou model d'escola inclusivaLa Generalitat aprueba el nuevo modelo de escuela inclusivaThe Catalan Government sets a new inclusive schools model

The Generalitat de Catalunya -as the catalan government is named- has approved a new model of inclusive school in Catalonia. The measure opts for the regular integration of the boys and girls with intellectual disability while taking in consideration the specific needs of each case. The decree opens the door to a new philosophy in the schools, that

III Taller per a professionals relacionats amb la Síndrome X FràgilIII Taller para profesionales relacionados com el Síndrome X FrágilIII Workshop for X Fragile Syndrome related professionals

Noves vies d'investigació amb fàrmacs als Estats UnitsNuevas vías de investigación con fármacos en los Estados UnidosNew clinical trial with Fragile X Syndrome children in the United States

Elizabeth M. Berry-Kravis, MD, PhD has informed that Rush University Medical Center in Chicago is enrolling the first patient in the learning trial for children ages 3-6. This is the start of a large-scale fragile X clinical trial of Novartis AFQ056 (an mGluR5 antagonist) with children. With funding from the National Institutes of Health through the NeuroNext network,

Ja tenim disponible la memòria de l'any 2016Ya está disponible la memoria anual del 2016The 2016 anual report is already available

We are pleased to announce the Association’s anual report is already available. You will be able to find all the information related with the activities and services given during 2016. > Give it a look at: https://issuu.com/acsxf/docs/pdf_memoria_definitiu

Presentació del Consell Assessor de Pacients de CIBERERPresentación del Consejo Asesor de Pacientes de CibererCiberer's Patients advisory council release

CIBERER’s patients advisory council, formed by entities and associations of patients that has as a objective contribute to the improvement of the quality of the research of rare diseases, started its activity on Friday 7 of July with its first meeting at the University Hospital La Paz de Madrid. This new organ will promote the participation of

Tancament del curs PdA amb un final lúdicCierre del curso PdA con un final lúdicoPdA's year closing with a playful ending

El dissabte 1 de juliol, l’equip educatiu i els participants del Programa d’Autodeterminació van celebrar el final de curs amb diferents activitats lúdiques. La jornada va portar als nois al Camp Nou per a gaudir del Tour Barça Experience, tot seguit d’un dinar i una fantàstica tarda a la bolera. Els educadors destaquen la importància

Renovació de càrrecs de la Junta DirectivaRenovación de cargos de la Junta DirectivaDirectors' board new members

On Wednesday 14 of June, the Association celebrated an extraordinary general assembly to approve the renewal of the Board of directors members. The new Board of directors will be formed by three previous members: Mª Elena González, President of the Association. Previous Vocal. Carol Fraca, Vice-president of the Association. Previous Vocal. Roser