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Inscriu-te al III Taller per a Professionals

The 3rd Edition of the Workshop for Professionals organized by the Fragile X Syndrome Catalan Association. This year the day is divided into two parts, a workshop in the morning and a round table in the afternoon. You can make your inscriptions here.

Fantàstic GAM de tardor a Girona

L’últim cap de setmana de Setembre, varem organitzar un cap de setmana per a famílies de l’Associació. L’event va aplegar unes 60 persones a la casa de colònies Can Que, a Girona. Vam poder disfrutar de la piscina, de les vivències compartides en família, de l’experiència dels companys. Durant els dos dies ens van acompanyar

GAM sota les estrelles

To end the season before the summer we celebrate a GAM under the stars in the Sant Jordi School, at Saint Vicenç dels Horts. With our psychologist Clàudia, we treat all the management of the emotions with a child, young or adult with X Fragile, exchanging experiences lived, identifying the different emotions that Clàudia poses us to learn how

Taula Rodona del PdA 2018

In this round table, we worked through the values that are shared between all the parents and mothers, technical team and the board of directors. Through dynamic activities and all together, achieved a diversity of opinions and experiences, that are of vital importance to begin the next course. At the end, the values that resulted common were the hope,

Èxit total amb el concert solidari de Gospel Hearts

The 30th of June we celebrated a Solidarity Concert with Gospel Hearts, a non-profit organization that with his music helps to associations like our to give visibility to its cause. It gave us a full magic afternoon of music and dance to collect money in favour of the Catalan Association Syndrome X Fragile. The concert was celebrated in the Auditorium

Tornem a celebrar el Dinar de Famílies

              Every year, the last Sunday of May we celebrate the Lunch of Families of the Catalan Association Syndrome X Fragile. This year, around 100 people met at Can Montcau to celebrate this traditional appointment and gather to all the families of the association. Water, eggs and flour were the ingredients

Celebrem l'Assemblea Ordinària dels socis

The Saturday 5th of May in the Hospital Sant Joan de Deu we celebrated the ordinary assembly of the partners of the association to talk about the economic results of the year 2017 doing also an estimation of the group of activities that realised along the year. It is the space that the association offers to listen the opinion of all the partners

Com obtenir la targeta sanitària Cuida'm

We put at your disposal the information about the Individual Sanitary Card (TSI) “Cuida’m“. This card identifies people who have specific clinical characteristics so that they can receive differentiated attention, with a more adequate and personalized treatment with professionals and health services. As explained in the website of

L’Hospital Sant Joan de Déu forma part de la XUEC de Malalties Minoritàries

In the families-associations space of the Hospital of San Juan de Dios we met with its coordinator, Anna Bosque, with Dr. Mercedes Serrano, pediatric neurologist specializing in minority diseases and with Mercè Bolasell, case manager, to talk about improvements in the investigation and treatment of minority diseases, such as X-fragile, and the current

L’Hospital Parc de Taulí de Sabadell dóna veu a les Malalties Minoritàries

On February 28th, we met with the head of the Technical Secretariat of the Minority Diseases Unit of the Parc Taulí Hospital in Sabadell to talk about its web dedicated to Minority Diseases. The Hospital, which is a reference center in the care and management of these diseases, promotes, through this website, “to value and improve knowledge and