Who we are
The Fragile X Syndrome Association was founded in 1995 to cater for the needs of those families with children affected by Fragile X Syndrome, bringing together families and professionals. Fragile X Syndrome (FXS) is a genetic disorder of familiar transmission, linked to the X Chromosome. It can cause difficulties such as learning or intellectual problems.
It affects 1 in 4000 males and 1 in 6000 females, and 1 in 250 women is a carrier with no clinical symptoms.
One of the basic objectives of the Association is to provide orientation and support to families who have been diagnosed.